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posted about 1 month ago
The EveryLife Foundation for Rare Diseases is seeking a Chief Marketing and Communications Officer (CMCO) to join its team. The EveryLife Foundation is a science-based nonprofit, nonpartisan advocacy organization dedicated to bringing treatments to over 30 million Americans with rare diseases. The Foundation works with patient advocates, lawmakers, industry, academic scientists, the Food and Drug Administration (FDA), and the National Institutes of Health (NIH) to advance the equitable development of and access to lifesaving diagnoses, treatments, and cures. The CMCO serves as the principal advisor charged with executing comprehensive marketing and communications strategies to promote and amplify the EveryLife Foundation for Rare Diseases' brand across platforms. The CMCO will lead all communications externally, oversee the Foundation's marketing operations, and ensure timely and consistent internal communication to create awareness of plans and initiatives across the organization. This role involves collaborating with leadership and other key stakeholders in setting the vision for and leading the marketing and communications team, which includes media and public relations, brand and creative, mission materials, digital, social, and web marketing, lead generation and acquisition, and strategic communications. The CMCO will also work closely with the CEO and executive team to develop, execute, and evaluate the organization's strategic vision. This position may be a fully remote position, not based in the Washington, D.C. office. Key responsibilities include shaping the Foundation's overall organizational strategy and message, developing public relations and communication goals, executing a crisis communication plan, creating marketing/public relations strategies, and owning the Foundation's brand and organizational voice. The CMCO will also identify challenges and emerging communications issues, collaborate with the executive leadership team to develop strategies, and provide ongoing assessment and evaluation of public relations and communications strategies. Additionally, the CMCO will serve as a spokesperson, develop other spokespeople, craft compelling narratives, oversee the Foundation's website and social media strategy, and lead marketing for events. Occasional travel, weekend, and evening work may be required.